Yawning Bread. 9 July 2008

Regulate, not ban, the sale of human organs


    

 

 

The trade in human transplant organs is one of those issues where moral absolutism comes up against reality. Opinion is, as with many of such issues, going to be split along the same old lines. On the one side, there are those who value abstract black-and-white standards, often derived from some religious or quasi-religious principle about the sanctity of the human body and who tend to expect people to live up to standards or die by them. On the other side, there are those who put human beings centrestage, especially those who are suffering, healthwise and economically, and expect standards to be shaped to need rather than ideology.

Further complicating this debate is the faultline between those who would see a responsibility to protect the disadvantaged, and those who believe in individual autonomy. On this latter question, I am kind of uncertain where to draw the line.

But on the first question, I don't think being preachy solves anything. In this case however, preachiness has attained the status of law, in the form of the Human Organ Transplant Act (HOTA), which makes it an offence to enter into a contract to sell one's own or another person's organs:

Certain contracts, etc., to be void 

14. ­(1) Subject to this section, a contract or arrangement under which a person agrees, for valuable consideration, whether given or to be given to himself or to another person, to the sale or supply of any organ or blood from his body or from the body of another person, whether before or after his death or the death of the other person, as the case may be, shall be void.

(2) A person who enters into a contract or arrangement of the kind referred to in subsection (1) and to which that subsection applies shall be guilty of an offence and shall be liable on conviction to a fine not exceeding $10,000 or to imprisonment for a term not exceeding 12 months or to both.

(3) Subsection (1) shall not apply to or in relation to ­

(a) a contract or arrangement providing only for the reimbursement of any expenses necessarily incurred by a person in relation to the removal of any organ or blood in accordance with the provisions of any other written law; and

(b) any scheme introduced or approved by the Government granting medical benefits or privileges to any organ or blood donor and any member of the donor’s family or any person nominated by the donor.

 

This law hit the headlines a week or so ago when two extremely poor Indonesians, brought by a middleman to Singapore to sell their kidneys, were convicted here under HOTA on 27 June 2008.

Sulaiman Damanik, 26 an odd-job labourer from Sumatra, was promised 150 million rupiah (about S$22,000) in exchange for donating a living kidney to Tang Wee Sung, 56, the Executive Chairman of retail company C K Tang. Sulaiman would first have to lie on a statutory declaration that he was a distant relative of Tang and that he was giving his kidney altruistically, in order to circumvent the law and fool the hospital's ethics committee.

150 million rupiah was a lot of money for him, equivalent to a decade and a half's wages. However, he was caught before the operation was carried out, and it appears he has not seen the cash.

Tang Wee Sung himself is under investigation.

The other person caught was also from Sumatra, by the name of Toni. Aged 27 and an out-of-job garbage collector, he had undergone his operation before the law nabbed him. He had been paid 186 million rupiah (S$29,390) for donating a kidney to Juliana Soh, an Indonesian patient at Mount Elizabeth Hospital in Singapore. Toni had told the hospital's ethics committee that he was the patient's adopted son.

He returned to Indonesia after his operation, but came back to Singapore on 29 May escorting Sulaiman, whom he was involved in recruiting. The chief middleman however was a certain Wang Chin Seng, who is reportedly well known in medical circles as a patient referral agent. He too is under investigation. [1] 

* * * * *

 
Renal failure is a no insignificant problem. It is reported that in Singapore, there are about 600 cases on the transplant waiting list, with an average wait of 9 years. [2] 

Even though Singapore already has a law that makes cadaveric donations mandatory with an opt-out clause which few exercise while living, most deceased persons do not have organs suitable for transplant. Clearly, therefore, the supply of suitable kidneys in no way matches demand. More than 300 Singaporeans have gone overseas for transplants, many through the purchase of organs. [3] 

Desperate people, both those with kidney failure and those who are in economic hardship, will try to circumvent the law, which the Ministry of Health continues to defend. "Organ trading often involves the exploitation of poor and socially disadvantaged donors who are unable to make an informed choice and suffer potential medical risks," the ministry said.

That's fine in principle, but what this case has also shown is that visiting the law upon those who are already unfortunate is causing Singaporeans some moral unease. The Straits Times reported that 77 percent of the 1,300 respondents to its online poll felt it was time to review HOTA. [4] 

Among the suggestions put up is for a central body to regulate the sale of organs. It would only be legal for an adult to contract with this body for the sale of an organ, with private contracts remaining illegal. Ditto for buyers. As a clearinghouse, this body can perform a number of functions that private contracts cannot quite satisfy, among which would be matching donor and recipient more accurately, and ensuring that the donor gets the best possible deal. Apparently, Iran, of all places, has such a system in place.

This sounds a lot better than the present, absolutist approach that refuses to put a price on an organ. Underlying this approach are really two quite different concerns. One is that the poor would be exploited by the rich, e.g. as argued by the Ministry of Health; the other is that the human body is life and it would be obscene that it be priced.

No amount of tinkering with HOTA will satisfy the second, quasi-religious concern, which once again shows how religion can get in the way of sensible policy-making.

The first concern -- exploitation of the socially disadvantaged -- is not insoluble. Informed consent, adequate reflection time, transparency in pricing and good assurances of medical care are among the elements that help to address the issue.

As Michelle Tan argued in her commentary in the Sunday Times,

Inequality is a fact of life. Therefore, the role of a sophisticated society should be to regulate all dealings to ensure that the poor, the unhealthy and the desperate know their rights, and their risks versus their potential returns before they embark on any life-changing decisions. Taking the choice out of their hands in the name of protecting them is paternalistic and patronising. Being poor does not equal being stupid.

-- Sunday Times, 6 July 2008, Get off your high horse, moral arguments a luxury, by Michelle Tan Su May

 

* * * * *

 

Why haven't the buyers been prosecuted?

Gerald Giam, writing for The Online Citizen put the spotlight on the fact that the kidney buyers have not yet been prosecuted. In his view, paragraph 2 of Section 14 of HOTA covers buyers as well. After all, they too have entered into a contract.

He wrote: "Why then has the law not been executed in the case of the two buyers of the organs?

"When contacted by Channel NewsAsia, the Ministry of Health was not able to say whether the buyers in the illegal organ trading case will be prosecuted. It did say, however, that investigations are still ongoing, and it will wait for the outcome before taking further action.

"If indeed kidney buyers Juliana Soh and Tang Wee Sung get away without being charged, or receive a lighter sentence than the Indonesian sellers, then it would be a grave perversion of justice."

 

In a sense, therefore, HOTA or whatever replaces it, doesn't truly address the root problem. The problem isn't what to do about organ trading. The problem is why poverty and inequality are so severe.

Unfortunately, the moral high horse is often mounted by those who are great believers in prescriptive religion, which in the American century is frequently associated with support for untrammelled capitalism. That, to me, is the greater immorality. 

© Yawning Bread 


 

Push stem cell research

The rich, who can afford to buy kidneys, should also be required to donate substantially to stem cell research. The hope should be for one day to have the technology to grow an organ from stem cells. Such technology would not only alleviate suffering of the rich, but could also be used to help the poor and socially disadvantaged, who themselves suffer from kidney failure.

 

Footnotes

  1. Straits Times, 28 June 2008, Tangs chief named in kidneys-for-sale case. 
    Return to where you left off

  2. Straits Times, 29 June 2008, Desperation drives patients to buy organs.
    Return to where you left off

  3. Straits Times, 28 June 2008, More transplants under MOH scrutiny.
    Return to where you left off

  4. Straits Times, 3 July 2008, 3 in 4 polled are for changing the law.
    Return to where you left off

Addenda

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